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Archive | Information on dementia

Looking to the future for dementia with Lewy bodies

Dr Laura PhippsKirsty MaraisClaire LucasRobin BrisbourneKaty StubbsEd PinchesGlyn Morris

When the family of the late Robin Williams revealed that the actor had been living with dementia with Lewy bodies (DLB), it threw a spotlight on a disease that many people had not heard of before. Alongside tributes to his huge talent, extraordinary career, and inspiring personal qualities; many news outlets reported how the comedy […]

Your data, your power: How you can help save lives

Dr Laura PhippsKirsty MaraisClaire LucasRobin BrisbourneKaty StubbsEd PinchesGlyn Morris

When shared in a safe and ethical way, Alzheimer’s Research UK strongly believes health data can save lives. That’s why we’re excited by the new videos produced by Understanding Patient Data that give a closer look at how your health data is being used and the incredible impact it can have. The potential impact of […]

Why dementia doesn’t believe in gender parity

Dr Laura PhippsKirsty MaraisClaire LucasRobin BrisbourneKaty StubbsEd PinchesGlyn Morris

As we take time today to celebrate International Women’s Day and the incredible women who are helping to #pressforprogress in research and science, we must also reflect on a hard reality – women are a marginalised majority when it comes to dementia. Not only are women far more likely to end up as carers of […]

What dementia means for ethnic minorities in the UK

Baber Malik

There are approximately 850,000 people living with dementia in the UK, 15,000 of whom come from black, Asian and minority ethnic (BAME) communities. The latter statistic is concerning because many of the people from BAME groups living with dementia will receive no support or will be diagnosed too late for symptomatic treatments to help. There […]

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Dementia books for children

Dr Laura PhippsKirsty MaraisClaire LucasRobin BrisbourneKaty StubbsEd PinchesGlyn Morris

You can now order free copies of our children’s books ‘Grandad’s Hat’ and ‘When Grandma Came to Stay’ via the ‘Information about dementia’ section of our materials and literature page. Princesses, monkeys and dragons We’re proud to tell you that our Dementia Explained website, which helps children and young people better understand dementia, has recently […]

The Blood and the Brain – where is the link?

Dr Laura PhippsKirsty MaraisClaire LucasRobin BrisbourneKaty StubbsEd PinchesGlyn Morris

Dementia affects many of us, with devastating effects on individuals, families and friends. While we currently lack effective treatments to prevent the condition, new research is constantly advancing and changing our understanding of the diseases which lead to it. Just last week we reported news of a study from the US reporting that women who […]

Eight phases of FTD

John Hirst

John Hirst’s wife, Pat, died in July from frontotemporal dementia. She was only 66.

Frontotemporal dementia (FTD), sometimes called Pick’s disease, is a relatively rare form of dementia. It is thought to account for five percent of all dementia cases, although it is the second most common cause of dementia in people under the age of 65.

Pat’s disease caused her to lose interest in the world around her, to behave differently and to lose the ability to speak to her husband and family. To coincide with World FTD Awareness Week, John has written an account of his wife’s battle with FTD.

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Tipping the scales on dementia risk

Dr Laura PhippsKirsty MaraisClaire LucasRobin BrisbourneKaty StubbsEd PinchesGlyn Morris

You often hear people saying ‘prevention is better than cure’, and while there is no sure-fire way to prevent dementia, we are beginning to understand that there are ways we could reduce our risk of developing the condition. The biggest risk factors for dementia are our age and our genes, but with time machines and […]

My life with Lance

Adele Lotes

Adele Lootes is the primary carer for her partner Lance, who was diagnosed with behavioural variant frontotemporal dementia four years ago, at the age of 45. Adele describes what life has been like, living with Lance.

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