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Archive | Real life stories

My nan and dementia

Lucy Saunders

I’ve sat down to write about my grandmother several times over the last few months, and each time I’m unsure what to say. How did my nan fit into my story? Or did I just come into the end of hers? My nan is gone now, but I like to think her story isn’t over. […]

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Does Down’s syndrome hold the key to cracking Alzheimer’s?

Dr Laura PhippsKirsty MaraisClaire LucasRobin BrisbourneKaty StubbsEd PinchesGlyn Morris

It can come as a surprise to know that having Down’s syndrome puts people at much higher risk of Alzheimer’s. In fact, the genetic rearrangement that causes Down’s syndrome is one of the greatest genetic risk factors for Alzheimer’s. Sadly, everyone with Down’s syndrome will have developed the characteristic plaques and tangles of Alzheimer’s in […]

Alzheimer’s disease and Mum – our story

Amanda Franks

Amanda Franks My mum started to struggle with life in her early 50s. She was a vibrant, modern lady that loved her family, fashion and travelling. So when her behaviour started to change, dementia was not on our radar, and it was two years before we finally got a diagnosis. For mum, it wasn’t simply […]

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Why I’ve been sharing my health data for over 70 years

Dr Laura PhippsKirsty MaraisClaire LucasRobin BrisbourneKaty StubbsEd PinchesGlyn Morris

We’re living in an era of big data that is influencing all aspects of our lives, but maybe our health most of all. From paper records kept in drawers at GP surgeries to creating networks of digital information that can be shared between GPs and hospitals, we are benefiting more than ever before from our […]

Looking to the future for dementia with Lewy bodies

Dr Laura PhippsKirsty MaraisClaire LucasRobin BrisbourneKaty StubbsEd PinchesGlyn Morris

When the family of the late Robin Williams revealed that the actor had been living with dementia with Lewy bodies (DLB), it threw a spotlight on a disease that many people had not heard of before. Alongside tributes to his huge talent, extraordinary career, and inspiring personal qualities; many news outlets reported how the comedy […]

Why I felt compelled to stand up for people with dementia

Mark Bennett

After witnessing the impact of dementia on his mum, Mark Bennett felt he had to do whatever he could to ensure other families in the future were saved from the devastation of the condition. This is why Mark became a Campaigner for Alzheimer’s Research UK, so he can urge the government to kept dementia a […]

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Completing a year of challenges – my trek to Everest Base Camp

Laura Brown

Laura Brown recently completed a trek to Everest Base Camp. The trek was the last in a series of challenges that raised more than £4,000, including competing in the Middle Distance Triathlon European Championships in Denmark and City to Summit, a 150-mile duathlon from Edinburgh to the top of Ben Nevis. She was inspired to raise money for Alzheimer’s Research UK as both her nans died with dementia. Laura explains the joy – and sadness – of completing her “Year of Challenges”.

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