When the family of the late Robin Williams revealed that the actor had been living with dementia with Lewy bodies (DLB), it threw a spotlight on a disease that many people had not heard of before. Alongside tributes to his huge talent, extraordinary career, and inspiring personal qualities; many news outlets reported how the comedy […]
When shared in a safe and ethical way, Alzheimer’s Research UK strongly believes health data can save lives. That’s why we’re excited by the new videos produced by Understanding Patient Data that give a closer look at how your health data is being used and the incredible impact it can have. The potential impact of […]
As we take time today to celebrate International Women’s Day and the incredible women who are helping to #pressforprogress in research and science, we must also reflect on a hard reality – women are a marginalised majority when it comes to dementia. Not only are women far more likely to end up as carers of […]
There are approximately 850,000 people living with dementia in the UK, 15,000 of whom come from black, Asian and minority ethnic (BAME) communities. The latter statistic is concerning because many of the people from BAME groups living with dementia will receive no support or will be diagnosed too late for symptomatic treatments to help. There […]
You can now order free copies of our children’s books ‘Grandad’s Hat’ and ‘When Grandma Came to Stay’ via the ‘Information about dementia’ section of our materials and literature page. Princesses, monkeys and dragons We’re proud to tell you that our Dementia Explained website, which helps children and young people better understand dementia, has recently […]
Dementia affects many of us, with devastating effects on individuals, families and friends. While we currently lack effective treatments to prevent the condition, new research is constantly advancing and changing our understanding of the diseases which lead to it. Just last week we reported news of a study from the US reporting that women who […]
John Hirst’s wife, Pat, died in July from frontotemporal dementia. She was only 66.
Frontotemporal dementia (FTD), sometimes called Pick’s disease, is a relatively rare form of dementia. It is thought to account for five percent of all dementia cases, although it is the second most common cause of dementia in people under the age of 65.
Pat’s disease caused her to lose interest in the world around her, to behave differently and to lose the ability to speak to her husband and family. To coincide with World FTD Awareness Week, John has written an account of his wife’s battle with FTD.
You often hear people saying ‘prevention is better than cure’, and while there is no sure-fire way to prevent dementia, we are beginning to understand that there are ways we could reduce our risk of developing the condition. The biggest risk factors for dementia are our age and our genes, but with time machines and […]
This blog is a cross-post with The Huffington Post. When people hear the word Alzheimer’s, many envision an elderly person shut away in the depths of a care home. As a 25-year-old, I’m all too aware that young people assume that it’s a natural part of ageing, and nothing for them to worry about yet. […]
Adele Lootes is the primary carer for her partner Lance, who was diagnosed with behavioural variant frontotemporal dementia four years ago, at the age of 45. Adele describes what life has been like, living with Lance.