This is a jointly authored post from Tim Parry of Alzheimer’s Research UK, and Bart Somsen from our partners Ricoh Europe. Last summer, Alzheimer’s Research UK and Ricoh collaborated on a new campaign called Dementia Uncovered. This was designed to lift the lid on what happens in the brain to someone living with Alzheimer’s disease, […]
Back in 2013, the All-party Parliamentary Group (APPG) on Dementia published a report called ‘Dementia does not discriminate’. Drawing on the experiences of people from black, Asian and minority ethnic (BAME) communities, the APPG identified a number of aspects of dementia that hit these communities particularly hard. People from BAME communities may be more likely […]
Today we’re launching our Dementia Attitudes Monitor Report – an in-depth analysis of the UK’s attitudes towards dementia and research. Improving understanding and shaping attitudes towards dementia is crucial if we are to make breakthroughs in research possible, so the Monitor, which will be repeated every two years, is an essential tool for us. In […]
When the family of the late Robin Williams revealed that the actor had been living with dementia with Lewy bodies (DLB), it threw a spotlight on a disease that many people had not heard of before. Alongside tributes to his huge talent, extraordinary career, and inspiring personal qualities; many news outlets reported how the comedy […]
When shared in a safe and ethical way, Alzheimer’s Research UK strongly believes health data can save lives. That’s why we’re excited by the new videos produced by Understanding Patient Data that give a closer look at how your health data is being used and the incredible impact it can have. The potential impact of […]
As we take time today to celebrate International Women’s Day and the incredible women who are helping to #pressforprogress in research and science, we must also reflect on a hard reality – women are a marginalised majority when it comes to dementia. Not only are women far more likely to end up as carers of […]
There are approximately 850,000 people living with dementia in the UK, 15,000 of whom come from black, Asian and minority ethnic (BAME) communities. The latter statistic is concerning because many of the people from BAME groups living with dementia will receive no support or will be diagnosed too late for symptomatic treatments to help. There […]
You can now order free copies of our children’s books ‘Grandad’s Hat’ and ‘When Grandma Came to Stay’ via the ‘Information about dementia’ section of our materials and literature page. Princesses, monkeys and dragons We’re proud to tell you that our Dementia Explained website, which helps children and young people better understand dementia, has recently […]
Dementia affects many of us, with devastating effects on individuals, families and friends. While we currently lack effective treatments to prevent the condition, new research is constantly advancing and changing our understanding of the diseases which lead to it. Just last week we reported news of a study from the US reporting that women who […]
John Hirst’s wife, Pat, died in July from frontotemporal dementia. She was only 66.
Frontotemporal dementia (FTD), sometimes called Pick’s disease, is a relatively rare form of dementia. It is thought to account for five percent of all dementia cases, although it is the second most common cause of dementia in people under the age of 65.
Pat’s disease caused her to lose interest in the world around her, to behave differently and to lose the ability to speak to her husband and family. To coincide with World FTD Awareness Week, John has written an account of his wife’s battle with FTD.