You can now order free copies of our children’s books ‘Grandad’s Hat’ and ‘When Grandma Came to Stay’ via the ‘Information about dementia’ section of our materials and literature page. Princesses, monkeys and dragons We’re proud to tell you that our Dementia Explained website, which helps children and young people better understand dementia, has recently […]
John Hirst’s wife, Pat, died in July from frontotemporal dementia. She was only 66.
Frontotemporal dementia (FTD), sometimes called Pick’s disease, is a relatively rare form of dementia. It is thought to account for five percent of all dementia cases, although it is the second most common cause of dementia in people under the age of 65.
Pat’s disease caused her to lose interest in the world around her, to behave differently and to lose the ability to speak to her husband and family. To coincide with World FTD Awareness Week, John has written an account of his wife’s battle with FTD.
This blog is a cross-post with The Huffington Post. When people hear the word Alzheimer’s, many envision an elderly person shut away in the depths of a care home. As a 25-year-old, I’m all too aware that young people assume that it’s a natural part of ageing, and nothing for them to worry about yet. […]
Adele Lootes is the primary carer for her partner Lance, who was diagnosed with behavioural variant frontotemporal dementia four years ago, at the age of 45. Adele describes what life has been like, living with Lance.
Helen spent nine months before she took a single picture, to be sure to get to know the individuals and capture an image true to their character.
When the family of the late Robin Williams revealed that the actor had been living with dementia with Lewy bodies (DLB), it threw a spotlight on a disease that many people had not heard of before. Alongside tributes to his huge talent, extraordinary career, and inspiring personal qualities; many news outlets reported how the comedy […]
This blog is a cross-post with The Huffington Post. Almost daily, we are inundated with headlines about the devastating impact of dementia – on a personal, social and financial level. This week’s headlines featured a new report highlighting the increasing pressures on England’s health services, partly due to the rising number of people dying from […]
I was about 14 when my dad Ray was diagnosed with early-onset Alzheimer’s. He was only 52. I couldn’t really get my head around what was to come at the time. He was told in the prime of his life, with a mind that still worked almost perfectly, that slowly he was going to lose […]
This year’s Father’s Day will be Alison’s first without her dad John. He sadly died from vascular dementia after being diagnosed in 2007 at the age of 71. She decided to write a blog for Alzheimer’s Research UK, to share her experience with others and encourage donations to vital research this Sunday.
Today is Rare Disease Day – an initiative to raise awareness of diseases that are usually not well known and for which it can be particularly difficult for people to get the most appropriate diagnosis, treatment and care. Dementia isn’t rare. There are an estimated 47 million people in the world living with dementia and […]