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Archive | Living with dementia

Dementia books for children

Dr Laura PhippsKirsty MaraisClaire LucasRobin BrisbourneKaty StubbsFaye MonkEd Pinches

You can now order free copies of our children’s books ‘Grandad’s Hat’ and ‘When Grandma Came to Stay’ via the ‘Information about dementia’ section of our materials and literature page. Princesses, monkeys and dragons We’re proud to tell you that our Dementia Explained website, which helps children and young people better understand dementia, has recently […]

Eight phases of FTD

John Hirst

John Hirst’s wife, Pat, died in July from frontotemporal dementia. She was only 66.

Frontotemporal dementia (FTD), sometimes called Pick’s disease, is a relatively rare form of dementia. It is thought to account for five percent of all dementia cases, although it is the second most common cause of dementia in people under the age of 65.

Pat’s disease caused her to lose interest in the world around her, to behave differently and to lose the ability to speak to her husband and family. To coincide with World FTD Awareness Week, John has written an account of his wife’s battle with FTD.

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Getting a genetic test for familial Alzheimer’s disease at 25

Jess Fleig

This blog is a cross-post with The Huffington Post. When people hear the word Alzheimer’s, many envision an elderly person shut away in the depths of a care home. As a 25-year-old, I’m all too aware that young people assume that it’s a natural part of ageing, and nothing for them to worry about yet. […]

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My life with Lance

Adele Lotes

Adele Lootes is the primary carer for her partner Lance, who was diagnosed with behavioural variant frontotemporal dementia four years ago, at the age of 45. Adele describes what life has been like, living with Lance.

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I Am Still Me

Helen Williams

Helen spent nine months before she took a single picture, to be sure to get to know the individuals and capture an image true to their character.

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Looking to the future for dementia with Lewy bodies

Dr Laura PhippsKirsty MaraisClaire LucasRobin BrisbourneKaty StubbsFaye MonkEd Pinches

When the family of the late Robin Williams revealed that the actor had been living with dementia with Lewy bodies (DLB), it threw a spotlight on a disease that many people had not heard of before. Alongside tributes to his huge talent, extraordinary career, and inspiring personal qualities; many news outlets reported how the comedy […]

Dementia can no longer be ignored

Dr Matthew Norton

This blog is a cross-post with The Huffington Post. Almost daily, we are inundated with headlines about the devastating impact of dementia – on a personal, social and financial level. This week’s headlines featured a new report highlighting the increasing pressures on England’s health services, partly due to the rising number of people dying from […]

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My first Father’s Day without Dad

Alison Carter

This year’s Father’s Day will be Alison’s first without her dad John. He sadly died from vascular dementia after being diagnosed in 2007 at the age of 71. She decided to write a blog for Alzheimer’s Research UK, to share her experience with others and encourage donations to vital research this Sunday.

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Rare Disease Day

Dr Laura PhippsKirsty MaraisClaire LucasRobin BrisbourneKaty StubbsFaye MonkEd Pinches

Today is Rare Disease Day – an initiative to raise awareness of diseases that are usually not well known and for which it can be particularly difficult for people to get the most appropriate diagnosis, treatment and care. Dementia isn’t rare. There are an estimated 47 million people in the world living with dementia and […]