Amanda Franks My mum started to struggle with life in her early 50s. She was a vibrant, modern lady that loved her family, fashion and travelling. So when her behaviour started to change, dementia was not on our radar, and it was two years before we finally got a diagnosis. For mum, it wasn’t simply […]
When the family of the late Robin Williams revealed that the actor had been living with dementia with Lewy bodies (DLB), it threw a spotlight on a disease that many people had not heard of before. Alongside tributes to his huge talent, extraordinary career, and inspiring personal qualities; many news outlets reported how the comedy […]
Old Fools, a play by Tristan Bernays, is on stage at the Southwark Playhouse until 7 April, with the production kindly choosing to raise funds for Alzheimer’s Research UK. It’s a surprising, funny and touching tale about a couple, one of whom is living with Alzheimer’s, and their enduring efforts to hold their relationship together […]
As we take time today to celebrate International Women’s Day and the incredible women who are helping to #pressforprogress in research and science, we must also reflect on a hard reality – women are a marginalised majority when it comes to dementia. Not only are women far more likely to end up as carers of […]
Today is Rare Disease Day – an initiative to raise awareness of diseases that are usually not well known and for which it can be particularly difficult for people to get the most appropriate diagnosis, treatment and care. Dementia isn’t rare. There are an estimated 47 million people in the world living with dementia and […]
After witnessing the impact of dementia on his mum, Mark Bennett felt he had to do whatever he could to ensure other families in the future were saved from the devastation of the condition. This is why Mark became a Campaigner for Alzheimer’s Research UK, so he can urge the government to kept dementia a […]
I was about 14 when my dad Ray was diagnosed with early-onset Alzheimer’s. He was only 52. I couldn’t really get my head around what was to come at the time. He was told in the prime of his life, with a mind that still worked almost perfectly, that slowly he was going to lose […]
Rita Pepper’s daughter, Carla Bramall, is 40-years-old and in the late stages of dementia. The symptoms of the rare, inherited form of Alzheimer’s disease began when Carla was just 30. Carla’s father Barry died at 43 from the condition, and it’s also caused the death of her grandfather and uncle, while her cousin, like her, […]
You can now order free copies of our children’s books ‘Grandad’s Hat’ and ‘When Grandma Came to Stay’ via the ‘Information about dementia’ section of our materials and literature page. Princesses, monkeys and dragons We’re proud to tell you that our Dementia Explained website, which helps children and young people better understand dementia, has recently […]
John Hirst’s wife, Pat, died in July from frontotemporal dementia. She was only 66.
Frontotemporal dementia (FTD), sometimes called Pick’s disease, is a relatively rare form of dementia. It is thought to account for five percent of all dementia cases, although it is the second most common cause of dementia in people under the age of 65.
Pat’s disease caused her to lose interest in the world around her, to behave differently and to lose the ability to speak to her husband and family. To coincide with World FTD Awareness Week, John has written an account of his wife’s battle with FTD.