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Archive | Living with dementia

Why I felt compelled to stand up for people with dementia

Mark Bennett

After witnessing the impact of dementia on his mum, Mark Bennett felt he had to do whatever he could to ensure other families in the future were saved from the devastation of the condition. This is why Mark became a Campaigner for Alzheimer’s Research UK, so he can urge the government to kept dementia a […]

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My daughter Carla: dementia at 30

Rita Pepper

Rita Pepper’s daughter, Carla Bramall, is 40-years-old and in the late stages of dementia. The symptoms of the rare, inherited form of Alzheimer’s disease began when Carla was just 30. Carla’s father Barry died at 43 from the condition, and it’s also caused the death of her grandfather and uncle, while her cousin, like her, […]

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Dementia books for children

Dr Laura PhippsKirsty MaraisRobin BrisbourneKaty StubbsEd PinchesFiona Calverthonor pollardClaire Bromley

You can now order free copies of our children’s books ‘Grandad’s Hat’ and ‘When Grandma Came to Stay’ via the ‘Information about dementia’ section of our materials and literature page. Princesses, monkeys and dragons We’re proud to tell you that our Dementia Explained website, which helps children and young people better understand dementia, has recently […]

Eight phases of FTD

John Hirst

John Hirst’s wife, Pat, died in July from frontotemporal dementia. She was only 66.

Frontotemporal dementia (FTD), sometimes called Pick’s disease, is a relatively rare form of dementia. It is thought to account for five percent of all dementia cases, although it is the second most common cause of dementia in people under the age of 65.

Pat’s disease caused her to lose interest in the world around her, to behave differently and to lose the ability to speak to her husband and family. To coincide with World FTD Awareness Week, John has written an account of his wife’s battle with FTD.

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My life with Lance

Adele Lotes

Adele Lootes is the primary carer for her partner Lance, who was diagnosed with behavioural variant frontotemporal dementia four years ago, at the age of 45. Adele describes what life has been like, living with Lance.

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I Am Still Me

Helen Williams

Helen spent nine months before she took a single picture, to be sure to get to know the individuals and capture an image true to their character.

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Dementia can no longer be ignored

Dr Matthew Norton

This blog is a cross-post with The Huffington Post. Almost daily, we are inundated with headlines about the devastating impact of dementia – on a personal, social and financial level. This week’s headlines featured a new report highlighting the increasing pressures on England’s health services, partly due to the rising number of people dying from […]

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My first Father’s Day without Dad

Alison Carter

This year’s Father’s Day will be Alison’s first without her dad John. He sadly died from vascular dementia after being diagnosed in 2007 at the age of 71. She decided to write a blog for Alzheimer’s Research UK, to share her experience with others and encourage donations to vital research this Sunday.

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