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Eight phases of FTD

John Hirst

John Hirst’s wife, Pat, died in July from frontotemporal dementia. She was only 66.

Frontotemporal dementia (FTD), sometimes called Pick’s disease, is a relatively rare form of dementia. It is thought to account for five percent of all dementia cases, although it is the second most common cause of dementia in people under the age of 65.

Pat’s disease caused her to lose interest in the world around her, to behave differently and to lose the ability to speak to her husband and family. To coincide with World FTD Awareness Week, John has written an account of his wife’s battle with FTD.

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Talking about dementia

Denise Wallin

My mum can no longer do anything for herself. She needs someone to get her dressed and out of bed, feed her, remind her to swallow when she’s eating or drinking, brush her teeth, wash her hair, change her and push her wheelchair. Mum is 65-years-old and is in the advanced stages of frontotemporal dementia […]

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Getting a genetic test for familial Alzheimer’s disease at 25

Jess Fleig

This blog is a cross-post with The Huffington Post. When people hear the word Alzheimer’s, many envision an elderly person shut away in the depths of a care home. As a 25-year-old, I’m all too aware that young people assume that it’s a natural part of ageing, and nothing for them to worry about yet. […]

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My life with Lance

Adele Lotes

Adele Lootes is the primary carer for her partner Lance, who was diagnosed with behavioural variant frontotemporal dementia four years ago, at the age of 45. Adele describes what life has been like, living with Lance.

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I Am Still Me

Helen Williams

Helen spent nine months before she took a single picture, to be sure to get to know the individuals and capture an image true to their character.

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Looking to the future for dementia with Lewy bodies

Dr Laura PhippsKirsty MaraisClaire LucasRobin BrisbourneKaty StubbsFaye MonkEd Pinches

When the family of the late Robin Williams revealed that the actor had been living with dementia with Lewy bodies (DLB), it threw a spotlight on a disease that many people had not heard of before. Alongside tributes to his huge talent, extraordinary career, and inspiring personal qualities; many news outlets reported how the comedy […]

Does Down’s syndrome hold the key to cracking Alzheimer’s?

Dr Laura PhippsKirsty MaraisClaire LucasRobin BrisbourneKaty StubbsFaye MonkEd Pinches

It can come as a surprise to know that having Down’s syndrome puts people at much higher risk of Alzheimer’s. In fact, the genetic rearrangement that causes Down’s syndrome is one of the greatest genetic risk factors for Alzheimer’s. Sadly, everyone with Down’s syndrome will have developed the characteristic plaques and tangles of Alzheimer’s in […]

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