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Archive | Real life stories

Alzheimer’s disease and Mum – our story

Amanda Franks

Amanda Franks My mum started to struggle with life in her early 50s. She was a vibrant, modern lady that loved her family, fashion and travelling. So when her behaviour started to change, dementia was not on our radar, and it was two years before we finally got a diagnosis. For mum, it wasn’t simply […]

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Why I’ve been sharing my health data for over 70 years

Kirsty MaraisClare van LyndenSusan MitchellEmily CookEmma HardwickHelen DaviesMelody Paton Borchardt

We’re living in an era of big data that is influencing all aspects of our lives, but maybe our health most of all. From paper records kept in drawers at GP surgeries to creating networks of digital information that can be shared between GPs and hospitals, we are benefiting more than ever before from our […]

Looking to the future for dementia with Lewy bodies

Kirsty MaraisClare van LyndenSusan MitchellEmily CookEmma HardwickHelen DaviesMelody Paton Borchardt

When the family of the late Robin Williams revealed that the actor had been living with dementia with Lewy bodies (DLB), it threw a spotlight on a disease that many people had not heard of before. Alongside tributes to his huge talent, extraordinary career, and inspiring personal qualities; many news outlets reported how the comedy […]

Why I felt compelled to stand up for people with dementia

Mark Bennett

After witnessing the impact of dementia on his mum, Mark Bennett felt he had to do whatever he could to ensure other families in the future were saved from the devastation of the condition. This is why Mark became a Campaigner for Alzheimer’s Research UK, so he can urge the government to kept dementia a […]

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Completing a year of challenges – my trek to Everest Base Camp

Laura Brown

Laura Brown recently completed a trek to Everest Base Camp. The trek was the last in a series of challenges that raised more than £4,000, including competing in the Middle Distance Triathlon European Championships in Denmark and City to Summit, a 150-mile duathlon from Edinburgh to the top of Ben Nevis. She was inspired to raise money for Alzheimer’s Research UK as both her nans died with dementia. Laura explains the joy – and sadness – of completing her “Year of Challenges”.

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My daughter Carla: dementia at 30

Rita Pepper

Rita Pepper’s daughter, Carla Bramall, is 40-years-old and in the late stages of dementia. The symptoms of the rare, inherited form of Alzheimer’s disease began when Carla was just 30. Carla’s father Barry died at 43 from the condition, and it’s also caused the death of her grandfather and uncle, while her cousin, like her, […]

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