Rita Pepper’s daughter, Carla Bramall, is 40-years-old and in the late stages of dementia. The symptoms of the rare, inherited form of Alzheimer’s disease began when Carla was just 30. Carla’s father Barry died at 43 from the condition, and it’s also caused the death of her grandfather and uncle, while her cousin, like her, […]
Last year, a new Christmas ad premiered. I took notice because a) I love Christmas b) it was conceptualised by an old colleague of mine and therefore filled my Facebook timeline and c) it tackles Alzheimer’s head on. There’s not a single day that goes past when I don’t think about my mother. She was […]
My auntie passed away last year after living with Alzheimer’s disease for 11 years, this was obviously a really sad time for all of my brothers and sisters (there are nine of them!) but actually, what affected me even more than this, was the profound loss felt by my twin brother Keith who was her […]
Last year, Alzheimer’s Research UK asked me to tell a thought-provoking story imagining a world where Santa was affected by dementia. In the year since Santa Forgot first launched, over 200,000 more people in the UK have developed the condition and they’re surrounded by families that may be struggling to cope this Christmas. Many of […]
I want to tell our story of early-onset dementia. It is important to me because so many people think of dementia as a condition that affects the elderly and makes them forgetful. The truth is that dementia can strike at any time and its effects on the person and their family can be shattering.
I am not a winner. Everybody has a story about how they got into cycling, what it means to them or why they do it. When we find ourselves moved to raise money for a cause, this story becomes a raison d’etre and history becomes motivation. Briefly; this is my story. I am not a […]
John Hirst’s wife, Pat, died in July from frontotemporal dementia. She was only 66.
Frontotemporal dementia (FTD), sometimes called Pick’s disease, is a relatively rare form of dementia. It is thought to account for five percent of all dementia cases, although it is the second most common cause of dementia in people under the age of 65.
Pat’s disease caused her to lose interest in the world around her, to behave differently and to lose the ability to speak to her husband and family. To coincide with World FTD Awareness Week, John has written an account of his wife’s battle with FTD.
My mum can no longer do anything for herself. She needs someone to get her dressed and out of bed, feed her, remind her to swallow when she’s eating or drinking, brush her teeth, wash her hair, change her and push her wheelchair. Mum is 65-years-old and is in the advanced stages of frontotemporal dementia […]
This blog is a cross-post with The Huffington Post. When people hear the word Alzheimer’s, many envision an elderly person shut away in the depths of a care home. As a 25-year-old, I was all too aware that young people assume that it’s a natural part of ageing, and nothing for them to worry about […]
Adele Lootes is the primary carer for her partner Lance, who was diagnosed with behavioural variant frontotemporal dementia four years ago, at the age of 45. Adele describes what life has been like, living with Lance.